I have a very special family shoot to share with you today. The mum came on one of my photography workshops a couple of years ago. I noticed a link to Harrison’s Fund on her Facebook page and clicked through to it.
The story of her eldest son Harrison moved me to tears.
Harrison is just like any other 8 year old boy, he loves Star Wars and Lego and messing around with his little brother.
But Harrison also has a heart-breaking story. At the age of 4 he was diagnosed with the fatal disease, Duchenne muscular dystrophy. This is a horrible disease which makes the muscles deteriorate, and the current outlook is bleak for children diagnosed with it.
Harrison’s parents quickly set up the charity Harrison’s Fund which has one goal…to find a cure for Duchenne before it’s too late. What they have done to raise awareness and money for the charity is truly inspiring.
Last year Harrison’s Dad, Alex, completed an Ironman triathlon pulling/carrying/hauling 35kg Harrison around the whole route with him. Read more about this amazing challenge here. Alex deservedly won ‘Fundraiser of the Year’ at the Sussex Community Hero awards for raising over £50,000 from this event.
I was lucky enough to get to photograph Harrison and his family last spring. As soon as I met Harrison he was checking out my cameras and reflector and asking lots of questions, just as his mummy had predicted he would. He really is a gorgeous, funny boy as is his little brother.
Here are some of the photos from our shoot…
A few weeks ago I saw that their charity Harrisons Fund were looking for people to join their team to run the Surrey Half Marathon so I signed up immediately (and talked my husband into running it with me!) I haven’t run more than 4 miles in nearly 20 years so running 13.1 miles is going to be a real challenge for me!
Here is our fundraising page, every penny you give goes towards finding a cure for Duchenne. I would be so grateful if you could give anything you can, and it will make all of the cold muddy training runs a little more bearable!
Thank you so much.